You may have heard Victoria on “Finding Happy the Podcast” speaking with Sinead about the power of love.
After her 6-month old daughter, Gwendolyn, was diagnosed with spinal muscular atrophy (SMA) Type 1, Victoria and her husband created the Gwendolyn Strong Foundation to do something in the face of nothing. In the last ten years, GSF has raised over 4 million dollars to fund research around the globe, including the FDA-approved gene replacement therapy (known as Zolgensma) that has gone on to transform SMA and potentially other disease. Victoria has worked to get federal legislation passed, newborn and carrier screening federally endorsed, and provided financial support to 600 SMA and rare disease families. She also created NEVER GIVE UP, a nonprofit apparel brand that is made to inspire courage and kindness. Now, the foundation is building Gwendolyn’s Playground, the first inclusive playground in Santa Barbara County, so all children can experience the fundamental childhood joy of community play. Visit www.NeverGiveUp.org to learn more.