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You may have heard Victoria Strong on Finding Happy The Podcast speaking with Sinéad about the Power of Love…
After her 6-month-old daughter, Gwendolyn, was diagnosed with spinal muscular atrophy (SMA) Type 1, Victoria Strong and her husband created the Gwendolyn Strong Foundation to do something in the face of nothing. In the last ten years, GSF has raised over $4Million to fund research around the globe, including the FDA-approved gene replacement therapy (Zolgensma) that has gone on to transform SMA and potentially other diseases. Victoria has worked to get federal legislation passed, newborn and carrier screening federally endorsed, provided financial support to 600 SMA and rare disease families, and created NEVER GIVE UP., a nonprofit apparel brand to inspire courage and kindness. Now, the foundation is building Gwendolyn’s Playground, the first inclusive playground in Santa Barbara County, so all children can experience the fundamental childhood joy of community play.
Visit www.NeverGiveUp.org to learn more.
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